Totally unrelated? Well, not really, as I believe most things in our life eventually find their connection to our daily walk in this journey. I am in a hard place this morning. Emotionally spent, and without a plan at the moment.
For the last few weeks, my Mom has been suffering with an 'intensely itchy red bumps w/ fluid that forms in the bump after a few days' rash. She has had several outbreaks of this rash. First on her hands, then randomly w/ a bump or two - here or there - then an outbreak on her face.. now it's on the back of her neck and her shoulder.
Each time in the past she was seen, and given different reasons for the rash. Eczema. And underlying virus lying dormant. Dry conditions in her room. Etc.
And each time she was put on Prednisone - which totally arrested the continuation of this raging whatever it is... which is great. Except I began to notice that her 4 subsequent strokes (since the first inital one following surgery) were all w/in 7-10 days of ending her Prednisone treatments, and all because her Coumadin levels dropped off unexpectedly.
So - since Christmas I have been using a Steroidal Cream (prescription strength) - and was making good headway - until one night about two weeks ago, for some unknown reason... my mom scratched the heck out of herself, and tore open the skin in 3 areas.
I now have open wounds... that no matter what I do, or use, or try, or bandage every which way... will not heal. Largely this is because by day two or so of the healing process, she gets an itch, scratches the heck out of them again, and removes any new or beginning scab.
So this past week, we have been to the dr.'s, to a dermatologist, and to the ER. And 3 times this week she has ripped them back open. To the point of bleeding. Soreness. Pain. It's awful. She's miserable. And I have no idea how to help her.
She simply doesn't remember to leave them alone. And I can be out of her sight long enough to use the toilet and come back to utter destruction.
My mom has issues. Cognitive brain damage issues from the first stroke. And secondary short term memory loss from one of the subsequent strokes.
I have been completely reluctant to put her back on Prednisone to get this under control, as I am fearful she will suffer another stroke on the other side of that treatment. But this rash is now starting to show up in new spots on her back, and several on her face again.
I am just at a total loss of what to do. And trust me, if I thought seeking another medical professionals opinion would help, I would already be there.
Please join me in praying for a total healing of this crazy rash, as anything less will have me filling that foolish prescription before the day is out.
Much Love.
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![](https://m.ftscrt.com/static/images/box/membersicon.gif) Commentaires
oh, yeah.. I forgot.. up two pounds in this mornings weigh in! yeehaa! unrelated? I think not!
27 janv. 12 par le membre: jsfantome
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Most definitely related Paula. I am so sorry your mother is going through this. It must leave you feeling so utterly helpless. I know you love your mother and would do anything to avoid her any pain and discomfort. I am at a loss as to any advice except for seeking His guideance. I will pray for your mothers healing. And I will pray for your strength. Sending you much love.
27 janv. 12 par le membre: kmartin
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thanks Keli... I need it right now.
27 janv. 12 par le membre: jsfantome
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So sorry to hear about your mom Jsfantome. Have you tried getting her to wear very thin gloves.... I know it sounds weird - but it is her nails that are doing the damage. Maybe you could get some lacy ones, that look super "cool". I don't know if she would wear them - but maybe worth a try. ... Re the weight... Just shows what worry and stress does to our bodies. Hope it gets better soon xx
27 janv. 12 par le membre: Sk1nnyfuture
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thank you Skinny - yeah, I've tried the gloves, even tried taping them on her - and of course her nails are trimmed down as short and filed as possible. No progress. She just forgets why the gloves are there, and works at tearing them off until they are removed... I feel like I have tried EVERYTHING. Maybe I haven't. But I feel like I have!
27 janv. 12 par le membre: jsfantome
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So sorry about all the struggles with your mom right now. I am praying for your peace of mind as well as healing for your mom.
It is amazing what stress can do to our bodies. Try to take a few minutes for yourself today. Even if it just sitting in a room with peave and quite so your brain can process everything.
27 janv. 12 par le membre: wichitaks
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Hang in there, you are amazingly strong. You sound like you have processed all scenerios in your brain over and over and over. I hope she will get better. My mother had a "mysterious" boil problem and it went away (years) as mysteriuosly as it came. I hope there is a way the doc can put the connections between prednisone and the stroke together and find out why she could have had the stroke from it. Then if she needs to go on it, you will be ready with a stroke percaution. I sent you and her love and quick recovery!
27 janv. 12 par le membre: Lizzygracemusic
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Hey Kansas - thank you for your prayers. It means the world to me. And Lizzy, you too! Thanks for the love... it's just a hard place to be right now. I need to choose what's BEST for HER, and I am thinking getting this under control and arrested in her system, will give these open sores a chance at healing. ??? just don't know for sure. Don't really think any of you will either, but it sure makes me feel a lot better to be able to chat about it. much love.
27 janv. 12 par le membre: jsfantome
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I can totall relate to what your Mom is going through. I have a lot of skin allergies and refuse to take Prednisone. So have learned through trial and error that Nasonex nasal spray works wonders! It contains a very small amount of a steroid (but different than Prednisone). I keep an emergency bottle of it in my medicine cabinet. I usually start feeling relief in 1-2 days and only have to use it 2 weeks max. Now, this is an not an "officially listed" use for Nasonex, but maybe you can find a sympathetic doctor. If I find info on line I'll PM you the link.
27 janv. 12 par le membre: BuffyBear
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I'm so sorry you and your Mom are suffering so much. I will definitely pray for you and her starting right now. Stress probably does affect our weightloss. Hang in there. You have lots of supporters here.
27 janv. 12 par le membre: Multiplicity1
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27 janv. 12 par le membre: BHA
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Oh Paula, I'm so sorry you're dealing with this. I'm all too familiar with how someone with cognitive deficits can forget to not scratch, or take off gloves, or pull out tubes, or whatever. As Lizzy said, perhaps your mom's Dr. can come up with a solution to prevent the Coumadin levels from dropping when she comes off the Prednisone, as it sounds as if the Pred. is what can take care of the rash. I'll pray for both you and your mom.
27 janv. 12 par le membre: Sandy701
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Hope your mom and you feel better soon. I did 31 years on Prednisone. I'm hoping better comes sooner than later.
27 janv. 12 par le membre: Helewis
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Have you tried something like (in the UK) piriton, it's for hayfever, but may also help calm you Moms skin down. Not quite as effective as a steroid treatment, though may also not be as devastationg when she stops it. Wishing you the best XXX
27 janv. 12 par le membre: Di Happy
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So far the face bumps that are new, are not itchy. (thank God!) And - we have successfully made it thru the day w/out ripping anything off. Will have to just see this thru one day at a time. Our teenage son is having Pizza w/ his grandmother, and my loving hubby is taking me out! YAHOOOOOOOOO! Now if I can just get rid of this stress induced headache - I might actually enjoy myself! Much Love.
27 janv. 12 par le membre: jsfantome
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So pleased that she has got through the day, without doing any major damage. So sweet that your son is having pizza with his grandmother...... Enjoy your well deserved break tonight with your hubby... I hope it cures your headache x
27 janv. 12 par le membre: Sk1nnyfuture
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I'm sorry to hear your mom is having such a hard time. I will pray for you, her and the doctors to find the cause of this and be able to stop it without the Prednisone. Prays headed your way. HUGS:)
27 janv. 12 par le membre: LauPug1
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Oh Paula, hope you have a nice few hours away. Its not easy being your mum's caregiver especially given the cognitive difficulties. And with not getting a diagnosis. Wishing you a peaceful week-end. Big Hugs. XO
27 janv. 12 par le membre: sarahsmum
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Praying for you all so sorry to hear about your Mom so hard to deal with.....sending {{{HUGS}}} for you as well.
27 janv. 12 par le membre: Yvonne19
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